- Dentist - 1 cavity, needs thorough cleaning; will do under sedation this fall. She wasn't thrilled about this visit, but she let him look in her mouth. She HATES when I brush her teeth - she prefers to do it, but then she's really only brushing her tongue.
- ENT - some concerns about tonsils, they are HUGE ... just watching them for now.
- Audiologist - hearing is GOOD! Yay!
- Cardiologist - we knew Lil had an ASD (hole) that was repaired. She apparently also had a VSD (hole in a different place) that healed on its own, probably when she was a baby. We didn't know she had a valve repaired (stitched) during her surgery, and this mitral valve has a bit of back flow.
What does that mean? For now, she looks good. She had an EKG & an Echo (she's such a trooper & good listener!) The cardiologist started her on a low dose blood thinner, to help the blood flow easier, with the goal of preserving the life of that valve. Otherwise, in the future (5, 10, 20 years) she may need another operation to repair or replace that valve.
We really lucked out that there are pediatric cardiologist locally, and they're very highly regarded by parents we know. Way back when we first committed to Lil, a friend of mine connected me to Dr. S via email, and she was wonderful about answering my questions as best as she could. This heart stuff is all new to us, so any extra information was very valuable.
- Physical Therapy - Lil is very, very flexible, there's a lot of laxity in her. She's got flat feet, and gets around just fine, but she's not super steady. The PT recommended we get supports for her feet that she can wear in her shoes - so far, so good. We've got them, and we're working on getting her used to them, but that takes getting her to keep her shoes on!
It cracks me up to think that the first time I took her shoes off in our apartment she kept putting them back on ... now I can't keep shoes on her! When I buckle her into the van, before I close the door, she's got her sandals kicked off.
- Eye dr - when we first met Lil & started visiting her, Brian told her, "You're going to look so cute in glasses!" She's noticeably farsighted - turning one eye in when she tries to focus. Yesterday, my mom & I brought Ruby & Lil to the eye doctor. Ruby was fine & doesn't have to go back for 2 years, but Lil got a prescription for glasses & will go back in 6 months. Hopefully we'll get to order new glasses for her early next week - an eye doctor office in a nearby town carries the Specs 4 Us which is a line of glasses specially made for people with DS, so we're going to check those out.
One of the best parts is we were able to do all this locally so far!